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This website is for journaling and keeping family and friends up to speed with the treatments and progress Cadence is making.
Blog
03/16/2011 09:33
rain, rain, go away
Well, lets see. What is new. I know its been awhile since I have updated you, but honestly there isnt a whole lot to inform. Cadence still is being completely tube fed. She is still hypo metabolic and needs 2614 calories a day. We have been here for 12 days and Cadence...
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03/13/2011 15:05
Still here
Well we are still here. As of today Dr. O'Toole has started treating her as a food phobic. She is now taking the medication to reduce anxiety with eating since Cadence has stopped eating. She (Dr.) is also not offering her food. They will just be giving her calories through...
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03/11/2011 01:18
O what a day!
Well today most certainly had its highs and lows. This morning we met with Dr. O'Toole. She assured me we were not going to leave before the problem is solved. I now have a better understanding of what exactly is going on. First off, C is a ways away from the NG tube. ...
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03/09/2011 23:33
Frustrated
Well today we thought we would be done with the NG tube. Not so much. Cadence ate less than she has been for each meal today. So the tube was utilized after each meal. I can just hear Dr. Moshtael in the morning... oh, but wait! We finally will have Dr. O'Toole in the...
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03/08/2011 12:43
fight the fat
you know something that struck me as funny the last few days is how this country is fighting obesity. Im fighting for mine to gain just a few pounds! I never realized how much of the food we give her is reduced fat, lite, non fat. I have always excluded her eating times from ours,...
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03/07/2011 00:10
Day 5... technically
As of the end of day 4 I can say, Today was a good day. Blood draws are down to once a day. 6 AM. They sure know how to wake her up! They removed the food from her feeding tube last night. She is getting enough food down. So now its just...
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03/06/2011 07:56
Day 4
Cadence's mood has overall been better. We met Dr. Moshtael yesterday. She works the days Dr. O'Toole is gone. She started off the day letting C know who was boss. C told her she just wasnt going to eat until the NG tube was removed. Dr. Moshtael said, well we cant...
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03/05/2011 07:52
Could use some sun
Well I am a day late on posting for yesterday. I will try to remember and let you know what happened.
Cadence, Jon and I got to meet Dr. O'Toole. After about 3 hours of proding, peeing, weighing, questioning and answering, we were told Cadence would need to be...
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03/02/2011 13:36
edit and update!
Well we couldnt get to Portland when we had originally scheduled. Jon, Cadence and I will be leaving tomorrow, the 3rd of March for Cadence's Friday appointment. We will check into the Ronald McDonald house sometime in the late afternoon and maybe get to see some scenery. Then its...
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02/13/2011 23:57
Its going to happen this week
I'm not sure what I was expecting to feel, but this was not it. We were told that the clinic in Denver would not be a good fit for Cadence based on there not being a "support system". Their youngest patient is 15. They referred us to a clinic in Portland. We...
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News
02/14/2011 07:35
Dr Appointment scheduled
Cadence and I will be flying to Portland, OR on Thursday, February 17th and checking into the Ronald McDonald House. In the morning we will meet Dr. O'Toole at the Kartini Clinic and learn what the next steps will be.
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